Objective
The Patients' Council has the potential to play a significant role in making healthcare in India patient-driven. By taking the various programs of the government to the beneficiaries, advocating for patient rights and interests, educating patients, and empowering patients to become more active participants in their own healthcare, the Patients' Council can help to create a healthcare system that is more responsive to the needs and priorities of patients.
Structure
The Patients' Council will be governed by a National Executive Committee (NEC) composed of elected representatives from the state chapters. The NEC will be responsible for setting the strategic direction of the Patients' Council, overseeing its operations, and representing the interests of patients at the national level.
Each state chapter will have its own Executive Committee, which will be responsible for implementing the Patients' Council’s strategic goals and objectives at the state level. The state chapters will also be responsible for onboarding and supporting members, advocating for patient rights and interests at the state level, and collaborating with local healthcare providers and other stakeholders.
Each state chapter will have its own Executive Committee, which will be responsible for implementing the Patients' Council’s strategic goals and objectives at the state level. The state chapters will also be responsible for onboarding and supporting members, advocating for patient rights and interests at the state level, and collaborating with local healthcare providers and other stakeholders.
Organization - Tenure
- The number of members will be decided by the IPU Secretariat.
- The tenure of the Patients' Council will be for a period of two years.
- Membership of the Patients' Council can be renewed for another term based on extraordinary contributions.
- Those who fail to attend three consecutive meetings will be removed automatically from the Patients' Council.
- Membership will be based on a rotation basis – 1/3rd will retire every year.
Membership
Membership in the Patients' Council will be open to all Indian citizens (phase 1) who are interested in promoting patient-driven healthcare. Members will be encouraged to participate in the Patients' Council’s activities, including attending meetings, volunteering their time, and advocating for patient rights and interests. Membership of the Patients' Council will not have any fee associated with it.
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Funding
The Patients' Council will be funded through a combination of grants, donations or sponsorships.
Operations
The Patients' Council will operate on a bi-monthly basis. The secretariat will be provided by the International Patients’ Union and will be responsible for coordinating the activities of the NEC and the state chapters, providing support to members, and managing the Patients' Council’s finances.
Actions
The Patients' Council will engage in a variety of activities to achieve its goals, including:
Evaluation
The Patients' Council will regularly evaluate its performance to ensure that it is effectively achieving its goals. The evaluation will focus on the following key areas:
- Contribution to various initiatives of IPU.
- The impact on healthcare policy and practice.
- The effectiveness in educating and empowering patients.
- The ability to facilitate communication and collaboration between patients and other stakeholders.
- The Patients' Council will use the findings of the evaluation to improve its programs and services.
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